NATIONAL TAY-SACHS & ALLIED DISEASES Association of Delaware Valley

About NTSAD-DV

Services   |   Mission   |   History

Services

Information Materials

NTSAD-DV has developed an educational brochure “What is Tay-Sachs/What is Canavan.” This easy to understand, informative brochure is available free of charge through our office, or by download (insert link). If you would like a supply of brochures for your office, community center or classroom, please contact Rebecca at 215-887-0877 or info@tay-sach.org.

NTSAD-DV recently completed a new video to help educate the community about Tay-Sachs and Canavan diseases. “Knowledge is Power – Check Out Your Gene Pool” is an 11 minute video featuring interviews with a physician, genetic counselor and 2 families directly affected by Tay-Sachs and Canavan diseases. For more information click here.

Free Carrier Screening

NTSAD-DV remains committed to educating and screening every individual who is at-risk for Tay-Sachs or Canavan diseases. To that end, we continue to offer FREE TAY-SACHS and CANAVAN screening. NTSAD-DV has offered free screening opportunities since the inception of our screening program in 1972.

For more information about our free screening program, please visit our “Where can I get screened?”page.

Education

NTSAD-DV pursues speaking engagements to address adult and adolescent audiences as well as health care providers. If you are interested in booking a speaker for your organization in the PA, NJ, DE region, please contact Rebecca at 215-887-0877 or email ntsad@aol.com. Display and distribution of information materials is also a part of our education program, as well as participation in health and community fairs.

Public Awareness Campaigns

NTSAD-DV runs several print and online advertising campaigns each year designed to educate the at-risk public to the threat of Tay-Sachs and Canavan diseases. Many campaigns are designed to educate the non-Jewish population, especially Irish-Americans, about the threat of Tay-Sachs disease.

Referral, Resource, Support Network

NTSAD-DV’s Jenkintown, PA office is a clearing-house for the general public, the Jewish community, health care providers, the media, at-risk individuals and affected families seeking information, referrals and support related to Tay-Sachs, Canavan and other allied diseases.