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INFORMATION MATERIALS
The mainstay of our materials is a brief brochure explaining Tay-Sachs
and Canavan diseases and the strategy of prevention. In addition,
NTSAD-DV developed a video, titled "For My Sister, Elyssa,"
which features Dr. Laird Jackson as the medical expert and chronicles
one family's experience with Tay-Sachs disease. It is a valuable educational
tool for all ages. A teacher's guide for the video was also developed
and recently updated. Flyers, articles, and other printed communications
are developed on an asneeded basis and as funding permits. The IMPACT,
reporting on organization and Prevention Program activities as well
as developments related to the allied diseases, is written and distributed
twice a year.
COMMUNITY CARRIER SCREENINGS
To encourage testing, NTSAD-DV initiates and responds to opportunities
to provide Tay-Sachs screenings at convenient community locations
and in conjunction with community events.
EDUCATION
NTSAD-DV pursues speaking engagements to address adult and adolescent
audiences as well as health care providers. Display and distribution
of information materials is also a major part of our education program,
and participation in health fairs, college campus events, synagogue
and Federation activities, etc. is a priority.
TAY-SACHS AWARENESS MONTH
Each May is designated Tay-Sachs Awareness Month in the Delaware Valley
with free screening for everyone underwritten by NTSAD-DV, plus increased
public relations activities and a month-long schedule of neighborhood
screenings.
GIFT OF LIFE CERTIFICATES
Certificates entitle an engaged couple to two free Tay-Sachs and Canavan
screenings at the Thomas Jefferson Tay-Sachs Prevention Program. These
attractive gift certificates are distributed annually (and as-needed)
to area rabbis and the rabbis are encouraged to give them to couples
about to be married. This program is currently supported in part by
a grant from the Innovating Worthy Projects Foundation.
FREE STUDENT TESTING FOR TAY-SACHS AND CANAVAN
Since its inception, NTSAD-DV has sponsored free Tay-Sachs carrier
screening for students year-long and initiates on-campus activities
to raise awareness and encourage young adults to be tested.
PUBLIC AWARENESS CAMPAIGNS
NTSAD-DV engages in aggressive public awareness campaigns by placing
informative articles in various print media and generating publicity
for carrier screenings and educational events. On occasion, advertising
supplements these activities, especially to notify the public of free
Tay-Sachs testings during May.
REFERRAL, RESOURCE, SUPPORT NETWORK
NTSAD-DV's Jenkintown office is a clearing-house for the general public,
the Jewish community, health care providers, the media, at-risk individuals
and affected families seeking information, referrals and support related
to Tay-Sachs, Canavan and other allied diseases.
FUND RAISING EVENTS
NTSAD-DV sponsors fund raising activities and appeals, and develops
grant and sponsorship proposals, to generate the resources needed
to sustain its high quality, highly responsive services for the benefit
of the public.
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